New to HD

You may be visiting this website because you have just learned that you, a family member, a loved one or a colleague is at risk or has been diagnosed with Huntington's disease. Rest assured that there are organizations and a worldwide community to help you face the challenges as a person with HD, a caregiver, or a concerned friend.

We suggest you visit the following pages:

What is HD? This will explain the disease, its cause, its progression and current treatment options  click here.

Where can I get help? There are many organizations throughout the world dedicated to the support of people with HD. Find one in your location.

How do I tell my children? There is an organization dedicated to helping young people and their parents to learn and live with HD .  Visit the Huntington Disease Youth Organization (HDYO) or send an email.

Where can I find the latest developments in HD? Visit the news section of this website.

Recommendations for the Predictive Genetic Test in Huntington's Disease. An important document written by renowned experts on this matter.