SUPPORT GROUPS AND HUNTINGTON'S DISEASE ORGANISATIONS
A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - Y - Z
If your country doesn't appear in the list and you need information, please contact Gerrit Dommerholt
ASOCIACION PARA EL APOYO
A LOS ENFERMOS DE HUNTINGTON (APAEH)
Catamarca 19
Rufino (Santa Fe) CP 6100, Argentina
Mobile: 54-9-3382-578922
tel: 54-3382-4-28658 ; 03382 4 28658
Email: su_capelle@hotmail.com
- info@huntingtonargentina.com.ar
Website: www.huntingtonargentina.com.ar
(CONTACTS)
DR. FREDERICO MICHELI
HOSPITAL DE CLINICAS JOSÉ DE SAN MARTIN
Juncal 1695 5J,
1062 BUENOS AIRES, ARGENTINA
Tel: 54-1-4812 5732;
Fax: 54-1-4811 3076, Tel home: 54-1-4804 6676
Mobile Phone: 54-154-579 8371
Email: fmicheli@fibertel.com.ar
DR. MARCELLO MERELLO
DEPT MOVEMENT DISORDERS
Montaneses 2325
1428 BUENOS AIRES, ARGENTINA
Tel: 54-1-788 3444;
Fax: 54-1-784 7620; Tel home: 54-1-393 5806
Email: mmerello@fleni.org.ar
DR GUILLERMO ZEPPA
NEUROLOGY SERVICE, HOSPITAL PRIVADO DE CORDOBA
Naciones Unidas 346
5016 CORDOBA, ARGENTINA
Tel: 54-351-468 8216;
Fax: 54-351-468 8272; Tel home: 54-351-481 7404
Email: gzeppa@radar.com.ar
DR EMILIA MABEL GATTO
INSTITUTO DE NEUROCIENCIAS
Guardia Vieja 4435, Ciudad Autonoma de Buenos Aires
1428 BUENOS AIRES, ARGENTINA
Tel: 54-11-4867 7705/54-11-4781 8660;
Fax: 54-11-5371 3494, Tel home: 54-11-4785 3097
Email: emiliagatto@fibertel.com.ar
- ga_mem@yahoo.com
DR OSCAR S. GERSHANIK
DIRECTOR EXTRAPYRAMIDAL DISEASES SEC.
CENTRO NEUROLOGICO
La Rioja 951,
1221 BUENOS AIRES, ARGENTINA
Tel: 54-1-957 4770;
Fax: 54-1-957 6984; Tel home: 54-1-806 0366
Email: gersh@movi.com.ar
AUSTRALIA
AUSTRALIAN HUNTINGTON'S
DISEASE ASSOCIATION
Postbox 580, North Adelaide, South Australia 5006
Tel: 61 - 8 – 8271 2821
Fax: 61 -8 – 8271 2821
Email: s.judge@huntingtonssa.org
Website Australia National: www.huntingtonsaustralia.asn.au
Other Websites:
South Australia - www.huntingtonssa.org
Victoria - www.huntingtonsvic.org.au
Western Australia - www.huntingtonswa.org.au
New South Wales - www.ahdansw.asn.au
Queensland: www.huntingtonsqld.com
Tasmania: www.huntingtonsaustralia.asn.au/tasmania
AUSTRIA
ÖSTEREICHISCHE HUNTINGTON
HILFE
MR KURT ZWETTLER
Sibeliusstrasse 9/3/35, 1100 VIENNA, AUSTRIA
tel: 43-1-6150 265
Email: shg-huntington-wien@gmx.at
Website: www.huntington.at
Huntington Hilfe Linz
Ernst Aigner
Email: ernst.aigner@ing-aigner.at
Huntington Hilfe Graz
University Clinic of Psychiatry Karl Franzens
Auenburgerplatz 22, 8036 Graz, Austria
Tel : 43-316-3858 1612
Fax : 43-316-3853 5561
Email: medniki@gmx.at
Huntington Hilfe Tirol
Mrs Andrea Aichrainer
Ranggerweg 8/11
6170 Zirl
Mobil:+43 650 555 6175
Email:hht@gmx.at
Website: www.huntington-hilfe-tirol.at
Huntington Hilfe Kärnten
Mrs Gerda Jaritz
Mühlenweg 43/10
9500 Villach
Tel.: +43 650 391 4524
And
Mrs Christine Guggenberger
Tel.: +43 650 542 7217
Email: christina.guggenberger@infincon.com
- c1guggen@edu.uni-klu.ac.at
Huntington Hilfe Vorarlberg
Mrs. Andrea Amann
Moosmahdstr. 4
6850 Dornbirn
Mobil: +43 664 466 9308
Tel.: / Fax: +43 5572 263 74
Mail:club-antenne@utanet.at
Huntington Hilfe Salzburg
Mr Bernhard Gantschnigg
Wasserfallweg 1
4866 Unterach am Attersee
Tel.: +43 66 4238013, Fax:+43 7665 60090
Email: office@huntington-hilfe-salzburg.at
Website: www.huntington-hilfe-salzburg.at
BELGIUM
FLANDERS
HUNTINGTON LIGA
Mrs Beatrice De Schepper
Spelonckvaart 30
9180 MOERBEKE-WAAS, Belgium
Tel: 32-9-346 8991
Email: bea.deschepper@skynet.be
SOCIAL SERVICE
Krijkelberg 1,
B 3360 BIERBEEK, Belgium
tel: 32 - 16 452 759; fax: 32 - 16 - 452 760
Email: socialedienst@huntingtonliga.be
Website: www.huntingtonliga.be
BELGIUM
WALLONIA
LIGUE HUNTINGTON FRANCOPHONE
BELGE
4Bis, Rue Montagne Ste Walburge
4000 LIÈGE, BELGIUM
Tel: 32 - 4 - 225 87 33
Fax: 32-4-225 8469
Email: info@huntington.be - secretariat.lhfb@skynet.be
Website: www.huntington.be
BRASIL
ASSOCIAÇÄO
BRASIL HUNTINGTON
Rua Treze de Maio, 226 - Centro
CEP 12940.720
ATIBAIA - SAO PAULO -Brasil
Tel/Fax: 55 - 11 - 4412.2199
Email: info@abh.org.br ivy@abh.org.br
Website: http://www.abh.org.br
UNIAO DOS PARENTES E AMIGOS
DOS DOENTES DE HUNTINGTON
QE 32 Conjuno N Casa 25 Guara II
BRASILIA - DF 71065-141, Brasil
Tel/Fax: 55 - 61 - 3036 1594
Email: upadh@upadh.org.br
Website: www.upadh.org.br
HUNTINGTON SOCIETY OF CANADA
151 Frederick Street, Suite 400
N2H 2M2 KITCHENER, ONTARIO, Canada
Tel: 1 - 519 - 749 7063
Fax: 1 - 519 - 749 8965
Email: info@huntingtonsociety.ca
Website: www.huntingtonsociety.ca
SOCIÉTÉ HUNTINGTON DU QUEBEC
2300 Boulevard René Lévesque O.
MONTREAL, QUEBEC, H3H 2R5, Canada
Tel: 1 - 514 -282 4272
Fax: 1 - 514 - 937-0082
Email: shq@huntingtonqc.org
Website: www.huntingtonqc.ca
CHILE
AGRUPACIÓN CHILENA
DE HUNTINGTON
La Ramada 11694, Las Condes
SANTIAGO, Chile
Tel: 56-9-873 3703 / 56-9-8429 1291
Emails:
executive director Elisabeth Roth: Elisabeth@huntington.cl
President:
Rodrigo@huntington.cl
Website: www.huntington.cl
CHINA - HONG KONG (CONTACT)
Ken To
Room 1314, Lung Chu House
Lung Poon Court
Diamond Hill
Kowloon, HONG KONG
Tel: 852 – 9707 1405
Email: kensantoso@gmail.com
COLOMBIA
FUNDACION HUNTINGTON DE
COLOMBIA
Cra 30 No.53-89 of 304
Bogotá, COLOMBIA
Tel : 571-3774956 ;
Fax : 571-2218339
Email:fuhcol@gmail.com
Website: www.fuhcol.blogspot.com
CUBA (CONTACT)
Grupo Multidisciplinario
para la atención a pacientes y familiares con diagnóstico de Enfermedad
de Huntington.
Instituto de Neurología
y Neurocirugía
Dra. Tatiana Zaldivar Vaillant
Calle 29 esq D. Vedado
Havana City -CP 10400- Cuba
Tel: 537 - 553034; Fax: 53 7 55 18 20
Email: tzv@infomed.sld.cu
CZECH REPUBLIC
SPOLECNOST PRO POMOC PRI
HUNTINGTONOVE CHOROBE
Belobranske nam 6,
53002 Pardubice, CZECH REPUBLIC
Tel/fax: 420 – 724 903 243
Chairman: PharmDr Zdenka Vondrackova
Tel: 420-723-349 327; home 420-491-424 142
Email: info@huntington.cz
- zdenka.vondrackova@seznam.cz
- hrudahd@seznam.cz
Website: www.huntington.cz
Mrs Dr Jana Zidovska
Prazska 153, 25241 Dolni Brezany, Czech Republic
Tel: 420 – 737-198841; home: 420-241 910 454; clinic: 420-224-967 171-2
Email: jana.zidovska@seznam.cz
DENMARK
LANDSFORENINGEN MOD HUNTINGTON'S
CHOREA
Bystoevneparken 23, 701;
DK-2700 Bronshoj, Denmark
Tel: 45-9857 5323
Email: kontor@lhc.dk
Website: http://www.lhc.dk
Mrs Maria Cristina Guerra
Villacreses
Mindo, Ecuador
Tel: 593-2 2170075; Mobile: 08-551 2091
Email: c.g.villacreses@gmail.com
EGYPT (CONTACT)
Mr. HANY FARID HALEEM
6 Omraniastreet - Omrania
Giza 12211
Cairo - EGYPT
Tel: 202-3-571 1379
Cellphone : 20212 3972744
Email: hanyfarid612@yahoo.com
Website: http://www.geocities.com/hdegypt/
Dr BAHAA DEMIAN GRACE
Kasr Alaini College of Medicine
21 Mourad Street ; apt 11Giza
Cairo, Egypt
Tel : 202-35724344
Mobile : 20 12/3455662
Emergency : 20126734075
Email: drbahaademian@yahoo.com
FINNISH PARKINSON’S DISEASE
ASSOCIATION, HUNTINGTON DISEASE BRANCH
Rehabilitation Centre Suvituuli
Suvilinnantie 2, Postbox 905
20101 TURKU, Finland
Tel: 358 - 2 - 274 0412 / 358-2-5274 0421
Fax: 358 - 2 - 274 0444
Contact person: Arja Pasila
Email: arja.pasila@parkinson.fi
Website: http://www.parkinson.fi/
SUOMEN HUNTINGTON Yhdistys
ry
Tuulensuunkatu 2
20540 TURKU, Finland
Tel: 358-5-3764195
Email: heikki.tulento@fimnet.fi
FRANCE
ASSOCIATION HUNTINGTON FRANCE
42, 44 Rue du Chateau des Rentiers
75013 PARIS, FRANCE
Tel: 33 - 1 - 5360 0879;
Fax: 33 - 1- 5360 0899
Email: huntingtonfrance@wanadoo.fr
Website: huntington.fr
ASSOCIATION HUNTINGTON AVENIR
Centre d’Affaires
Montbertrand BP 24
38230 CHARVIEU, France
Tel: 4-7832 0285
Fax: 4-3742 5015
Email: contact@huntingtonavenir.net
- mgarcia@huntingtonavenir.net
Website: www.huntingtonavenir.net
DEUTSCHE HUNTINGTON HILFE
E.V.
Geschaefts und Beratungsstelle
Falkstrasse 73-77
D-47058 DUISBURG, GERMANY
Tel: 49 - 203 - 22915
Fax: 49 - 203 - 22925
Email: dhh@dhh-ev.de
Website: http://www.dhh-ev.de
and http://www.selbsthilfenetz.de
GREECE
ORGANISATION OF HUNTINGTON
IN GREECE
Mrs Lydia Veremis
Hydras 13
176-76 ATHENS, GREECE
Tel: 1-951 8054; Mobile: 6973 5178 27 or 6946 1612 85
Email: myopas@otenet.gr - lveremi@yahoo.gr
DEPARTMENT OF NEUROLOGY,
UNIVERSITY OF SZEGED
PROF DR LASZLO VECSEI
Semmelweis Str 6
H 6725 SZEGED, HUNGARY
Tel: 36 - 62 - 545351
Fax: 36 - 62 - 545597
Email: vecsei@nepsy.szote.u-szeged.hu
HUNTINGTON'S ORGANIZATION
P2-59 DLF QUTUB ENCLAVE Phase II
GURGAON 122002
HARYANA -INDIA
Tel : 91-124-356677;
Fax: 91 - 124 - 351 945
Email: nsingh@heidrick.com
IRAN
(CONTACT)
Mrs FABIOLA HORMOZAIN
Email: f.hormozian@yahoo.com
IRELAND
HUNTINGTON'S DISEASE ASSOCIATION
OF IRELAND
Carmichael Centre, North Brunswickstreet
DUBLIN 7, IRELAND
Tel: 353 - 1 - 872 1303
Fax: 353 - 1 - 872 9931; Tel/fax home: 353 - 1 - 623 2986
Email: hdai@indigo.ie
Website: www.huntingtons.ie
ISRAEL
ISRAELI HD ASSOCIATION
3 Lubezky street
GEDERA 70700, ISRAEL
Tel: 972 - 8 - 859 8573
Fax:: 972-8-8598573
Email: niradn@012.net.il
Website: www.huntington.org.il
ITALY
ASSOCIAZIONE ITALIANA COREA
DI HUNTINGTON - MILANO
C/o Instituto Auxologico Italiano IRCCS
Via A. Magnasco 2-20149 MILANO, ITALY
Tel: 39 - 02 - 619 112 618;
Email: segreteriaaichmilano@libero.it
Website: www.aichmilano.it
ASSOCIAZIONE ITALIANA COREA
DI HUNTINGTON - NAPOLI
POLICLINIO FEDERICO II, CLINICA NEUROLOGICA - ED17
Via Pansini, 5
80131 - NAPOLI - ITALY
Tel. 39-081 5455 213
Fax 39-081 7462 693
Email: aichnit@yahoo.it
ASSOCIAZIONE ITALIANA COREA
DE HUNTINGTON - ROMA (ONLUS)
Via Nomentana 56
00161 ROMA, ITALY
Tel: 39-06-44242033/39-06-44252298
Fax: 39-06-4424 2033
Email: paolazinzi@yahoo.com -
info@aichroma.com - wanda.danzi@aichroma.com
Website: http://www.aichroma.com
ASSOCIAZIONE ITALIANA COREA
DI HUNTINGTON - NEUROMED
Via Atinense 18
86077 POZZILI (IS), ITALY
Tel: 00390865-915238; 0039347-3132185
Fax: 00390865-927575
Email: neurogen@neuromed.it - aich-neuromed@yahoo.it
JAPANESE HUNTINGTON'S DISEASE
NETWORK
C/O MRS KAORI MUTO PH.D
3-1-1 ASAHI, MATSUMOTO, NAGANO 390-8621, JAPAN
Tel/Fax: 81 – 263-37-2369
Email: jhdn@mbd.nifty.com
Website: http://www.jhdn.org
HUNTINGTON SUPPORT GROUP
MALTA
4 Lion Street, Floriana, MALTA G.C.
Tel: 356 - 9949 3267;
Email: pengland@onvol.net
MALTESE HUNTINGTON DISEASE
ASSOCIATION
C/o Prof A. Cuschieri
Dept of Anatomy, University of Malta
Msida, Malta
Tel : 356 – 9989 4108 ; Fax : 356 – 213 9527
Email: cutajarhector@gmail.com
/ bedlam75@msn.com
Website: http://maltesehda.blogspot.com
MEXICO
ASOCIACION MEXICANA DE LA
ENFERMEDAD DE HUNTINGTON I.A.P.
Tesorelos 97, Toriello Guerra, Tlalpan
14050 MEXICO CITY, MEXICO
tel: 52 - 5424 3325
fax: 52 - 5424 3189
Email: asocia@prodigy.net.mx
VERENIGING VAN HUNTINGTON
Postbox 30470
2500 GL DEN HAAG, NETHERLANDS
tel: 31 - 70 - 314 8888
f Fax: 31 - 70 - 314 8880
Email: info@huntington.nl
Website: http://www.huntington.nl
NEW ZEALAND
HUNTINGTON'S DISEASE ASSOCIATION
(AUCKLAND) NEW ZEALAND
Neurological Support Centre
7a Taylors Road
Morningside, Auckland
or: PO Box 16238, Sandringham, Auckland, New Zealand
Email: virginia.hogg@xtra.co.nz
/ huntingtonsakld@xtra.co.nz
/ jane.had@xtra.co.nz
Website: www.huntingtons.org.nz
HUNTINGTON’S DISEASE
ASSOCIATION (CHRISTCHURCH) NEW ZEALAND
CHIRSTCHURCH COMMUNITY HOUSE
141 HEREFORD STREET
CHRISTCHURCH, NEW ZEALAND
Tel: 3-312 5612
Email: ddc2@clear.net.nz
HUNTINGTON’S DISEASE
ASSOCIATION (WELLINGTON) NEW ZEALAND
POSTBOX 30420
LOWER HUTT 5040, NEW ZEALAND
Tel: 4-569 3252
Email: jwigginswellingtonhda@hotmail.com
- Info.Wellington@xtra.co.nz
NORTHERN IRELAND
HUNTINGTON'S DISEASE ASSOCIATION
OF NORTHERN IRELAND
74 Lisburn Rd
Belfast BT28 1TS, Northern Ireland
Tel: 44 – 28 - 92670768
Email: info@hdani.org.uk
Website: www.hdani.org.uk
NORWAY
LANDSFORENINGEN FOR HUNTINGTON'S
SYKDOM
Grimsvollen 29,
4616 Kristiansand, NORWAY
Tel: 47- 902 - 02031
Email: leder@huntington.no
Website: www.huntington.no
HUNTINGTON DISEASE CARE
& CURE SOCIETY OF PAKISTAN
2 Sawati Gate
PESHAWAR CANTT
PAKISTAN
Tel: 92 - 91 – 528 7855
Email: hdccs@brain.net.pk
PAKISTAN HUNTINGTON DISEASE
SOCIETY
Shifa Maternity Hospital
Zaryab Road. Zaryab Colony, Faqirabad no 2
25000 PESHAWAR, PAKISTAN
Tel: 00-92 - (0)91 - 248 747; Mobile: 0092-03204951164
Email: dr_mussarat@hotmail.com
PERU (CONTACT)
Dr. Miriam Velez
Prolongacion, 265 Cusco 265
32 SAN MIGUEL, LIMA, PERU
Tel: 51 - 1 - 3280 504
tel/fax home: 51-1-263 5571
Email: miriamev@yahoo.com
HUNTINGTON SOCIETY OF PERU
Mrs Maria Begazo Viza
Arequipa, PERU
Tel: 51-54-245 982;
Fax: 51-54-211 1712
Email: mbegazo8@LatinMail.com
POLAND
POLSKIE STOWARZYSZENIE CHOROBY
HUNTINGTONA
Rekodzielnicza 17 A; 02 -267 Warsaw
tel./fax 48 22 846 41 51
Email: kontakt@huntington.pl -
d.lis@huntington.pl
Email chairman: d.lis@dana.com.pl
Wesite: www.huntington.pl
Mrs. Dr Dorota Hoffman-Zacharska
Email: dhoffman@poczta.wp.pl
PORTUGAL
ASSOCIACAO PORTUGUESA DE
DOENTES DE HUNTINGTON
Dr Filipa Julio
IBILI – Azinhaga de Sta.Comba
3000-354 Coimbra, Portrugal
Tel: 351.91.460 355
Email: filipasjulio@hotmail.com
- huntington.coimbra@hotmail.com
Website: www.huntington-portugal.com
Mrs Ursula Kleibrink
Rua Dr. Afonso Costa 32
8500-016 Alvor-Portimao
Tel/fax: 00-351-282459337
Email: hd.ass.port@mail.telepac.pt
Website: www.huntington-portugal.com
CENTRO DE INFORMACAO
DE LISBOA
Pc. Antonio Baiao 7, loja A
1500-567 LISBOA, Portugal
Mobile: 351-21-770 0014
DR FLORIAN ALEXANDRU & MARIA
MAGDALENA OBRETIN
SPERANTEI 27. AP 2, BUCURESTI. ROMANIA
Tel: 40-722 - 789 868; Fax: 40 – 318 - 056733
Email: obretin@gmail.com
RUSSIA
HUNTINGTON ASSOCIATION OF
RUSSIA
Dr Sergey A. Klyushnikov
Institute of Neurology, Dept of Neurogenetics
Russian Academy of Medical Sciences
Volokolamskoye Shosse 80
125367 MOSCOW, RUSSIA
tel: 7-95-490 2221
fax: 7-95-490 2210
Email: sergeklyush@gmail.com
SCOTLAND
SCOTTISH HUNTINGTON'S ASSOCIATION
St James Business Centre, Suite 135
Linwood Road, Paisley, PA3 3AT
Tel: 141-848 0308; Fax: 141 – 997 6199
Email: sha-admin@hdscotland.org
Website: http://www.hdscotland.org
SERBIA
(contact)
Mr Zoran Simonovic
Psihosocijalni savetnik
Blagoja Parovica BB
37000 Krusevac, Srbija,
Serbia
Tel:+38137410217;fax: +38137410103;mob:+38162209006
Email: zoran.simonovic@gmail.com
SLOVAKIA
SPOLECNOST PRE POMOC PRI
HUNTINGTONOVEJ CHOROBE V SLOVENSKEJ REPUBLIKE
Mrs Jana Pavlikova
Klokocova 737, 98101 Hnust´a, SLOVAKIA
Tel: 0475-423856 ; 09-15800155
Email: huntington@slovanet.sk
SLOVENIA
HUNTINGTON ASSOCIATION OF
SLOVENIA
Vrhovceva 13, Log Pri Brezovici 1358, SLOVENIA
Tel: 386-1-7566020; mobile: 386-40397289
Fax: 386-1-5603086
Email:ako9@siol.com
- jan.kobal@kclj.si
SOUTH AFRICA
HUNTINGTON'S ASSOCIATION
OF SOUTH AFRICA
Postbox 4640
TYGER VALLEY, CAPE TOWN 7536, SOUTH AFRICA
Tel: 27 21 9138913
Fax: 27 21 9138916
Mobile: 27-8241 03641
Email: jschron@iafrica.com - michaelh@tsdworld.co.za
Website: www.huntington.co.za
HUNTINGTON'S UNITED GROUP
SOUTH AFRICA
Mrs Tina-Marie Wessels
Genetic Counselling Clinic
University of the Witwatersrand & the National Health Laboratory Service
Postbox 1038
Johannesburg 2000
Tel: 11-489 9243
Fax: 11-489 9226
Email: tina-marie.wessels@nhls.ac.za
SOUTH KOREA (CONTACT)
Dr. Manho Kim
Dept of Neurology
Seoul National University Hospital
28 Yongodong, Chongnoku
SEOUL 110-744, South Korea
Tel: 82-2-2072 2193
Fax: 82-2-3672 7553
Email: kimmanho@snu.ac.kr
Mr ImWooseok
Yongondong Chongnoku
Seoul, NO ZIP NUM, South Korea
Tel: 82-2-2072 0890
Email: spon13@gmail.com
SPAIN
ASOCIACION DE COREA DE HUNTINGTON
ESPANOLA (ACHE)
Gran Vía, 59 4º planta
28013 Madrid, Spain
Tel: 615984858
Email: info@e-huntington.org -
ache-consultas@hotmail.com
Website: www.e-huntington.org
ASOCIACION DE PACIENTES
DE ENFERMEDAD DE HUNTINGTON (APEHUCA) (CONTACT)
Catorce de abril 85
11510 Puerto Real (Cádiz), Spain
Tel: 679897158; fax: 956 25 8755
Email: apehuca@hotmail.com - apehucasecretaria@hotmail.com
SURINAM (Contact)
Mr Dick IJskes
Pobox 871
Paramaribo
Surinam
Tel: 597-464036; Celular: 597-8818681
Email: d.yskes@sr.net
SWEDEN
HUNTINGTON FORENINGEN I
SVERIGE
C/O NHR
Postbox 490 84
100 28 STOCKHOLM, SWEDEN
Tel: 46 - 8 - 677 7010
Fax: 46 - 8 - 24 1 315
Email: mia@nhr.se / nhr@nhr.se
Website: www.nhr.se
Mrs THERESE PERSSON
Angavangsgatan 18
Angelholm 0 26241, Sweden
Tel: 46-10 458 8131
Email: huntington_nu@hotmail.com
Webiste: www.huntington_nu
RIKSFARBUNDET HUNTINGTONS
SJUKDON (RHS)
Mr Sture Andersson
BUNKEFLO STRAND , Sweden
Tel: 46-40-157505 / 46-733-563452
Email: sture.a@tele2.se
SWITZERLAND
SCHWEIZERISCHE HUNTINGTON
VEREINIGUNG
Bahnweg 4
8156 OBERHASLI, SWITZERLAND
Tel: : 41 - 44- 885 1941;
Fax: 41 - 44- 885 1944
Email: info@shv.ch
Website: www.shv.ch or www.huntington.ch
TURKISH HUNTINGTON SOCIETY
Prof. A. Nazli Basak
Bogazici University
Dept of Molecular Biology & Genetics
80815 Bebek - ISTANBUL. Turkey
Tel: 90 - 212 - 359 6679
Fax: 90 - 212 - 287 2468
Email: basak@boun.edu.tr
Website: www.boun.edu.tr
HUNTINGTON'S DISEASE ASSOCIATION
Suite 24 Liverpool Science Park
Innovation Centre 1
131 Mount Pleasant
L3 5TF Liverpool, UNITED KINGDOM
Tel: 44-151-331 5444; Fax: 44 – 151-331 5441
Email: info@hda.org.uk
Website: http://www.hda.org.uk/
UNITED STATES OF AMERICA
HUNTINGTON'S DISEASE SOCIETY
OF AMERICA
505 Eight Avenue, Suite 902
NEW YORK, NY 10018, USA
Tel: 1 - 212 - 242 1968
Fax: 1 - 212 - 239 3430
Email: lvetter@hdsa.org - hdsainfo@hdsa.org
Website: http://www.hdsa.org/
URUGUAY (CONTACT)
MRS MONTSERRAT MARTINEZ
Yaro 1038, AP 2
CP 11200 MONTEVIDEO, URUGUAY
Tel: 5982-409 8234;
Fax: 5982-401 3918
Email: lamonse@adinet.com.uy
- montsemora1954@yahoo.com
ASOCIACION VENEZOLANA DE
HUNTINGTON
MRS ALESKA GONZALEZ DE ZAMBRANO
Av. Principal de Colinas de Bello Monte
Calle Voltaire, Edificio Palpoc, piso 4, Apt 41
Parroquia el Recreo
1050 D.C. CARACAS, VENEZUELA
Tel: +58-212-7517 654
Fax: +58-261 5011
Email: avehun@hotmail.com
Website: avehun-venezuela.webnode.com.ve
DR ROBERTO WEISER
HOSPITAL UNIVERSITARIO DE CARACAS
Postbox 80207
1080 CARACAS, VENEZUELA
Tel: 58 - 2 - 991 5731;
Fax: 58 -2 - 979 0453
Email: rweiser@cantv.net
Prof Vladimir S. Kostic
Institute of Neurology CCS
Ul. Dr Subotica 6
1100 BELGRADE, YUGOSLAVIA
Tel: 381-11-685 596;
fax: 381-11-684 577
Email: kostic@imi.bg.ac.yu
Mr Manu Prajapati
13/23 RD Ave
FAMONA. BULAWAYO, ZIMBABWE
Tel: 263-9-64470; Fax: 263-9-883 067
Email: unampraja@ymail.com
OTHER COUNTRIES
GERRIT R. DOMMERHOLT I
CALLUNAHOF 8, 7217 ST HARFSEN, NETHERLANDS
tel: 31 - 573 - 431595
Fax: 31 - 573 - 431719
Email: iha@huntington-assoc.com
HEREDITARY DISEASE FOUNDATION
3960 Broadway, 6th floor.
New York – NY 10032, USA
Tel: 212-928 2121
Email: cures@hdfoundation.org
Website: www.hdfoundation.org
INTERNATIONAL
HUNTINGTON ASSOCIATION (IHA)
OFFICE MANAGER
GERRIT R. DOMMERHOLT
CALLUNAHOF 8, 7217 ST HARFSEN, NETHERLANDS
tel: 31 - 573 - 431595,
Email: iha@huntington-assoc.com
Website: www.huntington-assoc.com
ALLIANCE OF GENETIC SUPPORT GROUPS
35 Wisconsin Circle, Suite
440
Chevy Chase, MD 20815-7015, USA
Tel:1- 301 - 652 5553
Email: alliance@capaccess.org
WE MOVE
Worldwide Education and
Awareness for Movement Disorders
One Gustave L. Levy Place
Box 1052
New York, NY 10029, USA
Tel: 1-212.241 8567
Email: wemove@wemove.org
EFNA
European Federation of Neurological
Associations
Viale Pieraccini 6
Firenze 50139, Italy
Tel: 39-055-4362 098
Fax: 39-055-4271 280
Email: efns-branch@pharm.unifi.it
EURORDIS
European Organization for
Rare Disorders
102 Rue Didot
75014 Paris, France
Tel: 33 - 1 - 4416 2747
Fax: 33 - 1 - 4416 2712
Email: eurordis@eurordis.org
Website: http://www.eurordis.org/
EUROPEAN
HUNTINGTON ASSOCIATION
SEE BELGIUM: MS Bea de Schepper
EURO-HD
NETWORK
Tel: +49-731-500 50951
Email: info@euro-hd.net
Website:www.euro-hd.net
WORLD
FEDERATION OF NEUROLOGY RESEARCH GROUP ON HUNTINGTON DISEASE
Prof R.A.C.Roos
Email: r.a.c.roos.neurology@lumc.nl
Website:www.wfneurology.org
HUNTINGTON
STUDY GROUP
Tel:
+1-310-450 9913
Email: hsgwebmaster@ctcc.rochester.edu
Website:www.huntington-study-group.org
THE
HUNTINGTON PROJECT
Tel: +1-585-273 4147
Email: leslie.briner@ctcc.rochester.edu
Website: www.huntingtonproject.org
WORLDCONGRESS
ON HUNTINGTON DISEASE
www.worldcongress-hd.net
HUNTINGTON
DISEASE DRUG WORKS
www.hddrugworks.org
HUNTINGTON
DISEASE LIGHTHOUSE
www.hdlighthouse.org
HUNTINGTON
DISEASE ADVOCACY CENTER
www.hdac.org
HD
FREE WITH PGD
www.hdfreewithpgd.com
Huntington
Disease Youth Organization (HDYO)
www.hdyo.org
info@hdyo.org
HDBUZZ
www.hdbuzz.net
Red
Latinoamericana de Huntington
C/o Rodrigo Osorio
rosorio@rlah.net
Taise Cadore tcadore@rlah.net
IHA
BOARD
President: Ms Ann Jones
Email: annjones@aapt.net.au
Vice president: Ms Asuncion
Martinez
Email: asun@euro-hd.net
Treasurer: Ms Marie-Odile
Perrousseaux
Email: odile.perrousseaux@orange.fr
Secretary: Ms Louise Vetter
Email: lvetter@hdsa.org
International Development
Officer
Ms Christiane Lohkamp
Email: chris.lohkamp@dhh-ev.de
Ms Bea De Schepper
Email: bea.deschepper@skynet.be
Members at Large:
Ms Bev Heim-Myers
Email: bheimmyers@huntingtonsociety.ca
Ms Danuta Lis
Email: d.lis@dana.com.pt
Mr Matt Ellison
Email: just1moreperson@yahoo.com
Ms Filipa Julio
Email: Huntington.coimbra@hotmail.com
Mr Gerrit Dommerholt
Email: iha@huntington-assoc.com