What is Huntington's Disease?

Huntington's Disease (HD) is a neurological disease for which there is presently no known cure or effective treatment. HD causes gradual physical  emotional and cognitive deterioration.

 Find out more about HD

Where Can I Get Help?

There are HD organisations around the world.

Contact your local HD organisation

My Story - Living with HD

You are not alone facing the challenges of Huntington's disease. Members of the worldwide Huntington's disease community are willing to share their stories of living with HD.

See other people's stories

The International Huntington Association

A Global Effort to Help People with Huntington's Disease

The International Huntington Association (IHA) is a federation of national voluntary health agencies that share common concern for individuals with Huntington's Disease (HD) and their families. Each agency promotes lay and professional education; individual and family support; psycho-social, clinical and biomedical research; and ethical and legal considerations related to Huntington's Disease in its respective country.

Huntington's Disease (HD) is a neurological disease for which there is presently no known cure of effective treatment. HD causes gradual physical  emotional and cognitive deterioration. Symptoms include involuntary jerking movements of the limbs, face and trunk; increasing difficulty with communication, swallowing and walking; problems with planning, organisation and initiating, as well as personality change.

The disease usually strikes in the prime of life (age 30-45) and may appear earlier or later. Every child of an HD parent has a 50:50 risk of inheriting this genetic disease. There is a gradual deterioration over 10 to 25 years, leading to total incapacitation and eventual death.

The logo at the top of this page is the symbol of the international fight against Huntington's Disease. It is a diagram of a head and shoulders, representing the threat of Huntington's Disease to both mental and physical capabilities. The reduced size of the inner image indicates their diminution in the sufferer.

This symbol design appears as the flower of a growing, vibrant plant, and is protected within its leaves. The purpose, growth and development of the International Huntington Association is thereby illustrated, together with the increasing worldwide concern that this disease shall be tamed.

Meet the IHA Board of Directors

Purpose and history of IHA

 

 

Events

  • The 2013 World Congress on Huntington's Disease was held between September 15-18, 2013 in Rio de Janeiro, Brazil
    29 Jul 2013
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  • The Chinese HD Network was launched December 10th, 2011.
    10 Jan 2014
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  • “Cross Country for Huntington” - a solidary european biking tour promoted by Jeroen De Schepper, from the Belgium Flanders Huntington Liga. April – August 2014
    10 Jan 2014
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News

  • The International Huntington Association have elected a new board and are launching a new website to help connect Huntington's Disease patients and associations around the world.
    05 Nov 2013
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  • Guinness World Record successful attempt by Cam Wilson in aid of Huntingtons Queensland Association - Australia
    21 Feb 2014
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Research news